You are here:
Home / Archives for personal health data
In January 2007, a routine shoulder x-ray incidentally disclosed a shadow in the lung, that turned out to be metastasized kidney cancer (stage IV, grade 4 renal cell carcinoma). His median survival time at diagnosis was 24 weeks. A frequently cited aspect of Dave’s case is the multiple ways he used the internet.
Tags: (PHR) system, a new dynamic in how information is delivered, a recognised online champion, accessed and used by the patient, and conditions he'd never had, and muscle tissue, biologic therapy, check it for errors, comicStyle, e-Patient Dave, erroneous information: a false medication warning, exaggerated diagnoses, Featured Content, Gail Penney, Google Health, grade 4 renal cell carcinoma), Ideas worth spreading, kidney cancer, laboratory results, lifeStyle, main blog, median survival time at diagnosis, metastasized kidney cancer (stage IV, mindStyle matters, opening health care information directly to patients, participate actively in their care, participatory medicine, patients should be able to access their own medical data, penneylane, penneylaneonline, personal health data, question it, radiology reports and allergies, routine shoulder x-ray, several bones, shadow in the lung, surgery, system failed to transfer existing information, take it with them to another care provider, Ted Talk, Tedx, The New Life of e-Patient Dave, tumours in both lungs, turnStyle, VidStyle, win the battle over his cancer, writing journals and blog posts about his experiences, www.penneylaneonline.com
